This is Me Podcast featuring the CEO/Founder of Some 1 Like You, Makayla Allison and official spokesperson for Some 1 Like You, Shawnae Jebbia.
Makayla Allison is the CEO/Founder of Some 1 Like You, an organization that privately connects individuals with health conditions, inspired by her own 8-year-old daughter who has the rare genetic disease Ehlers Danlos Syndrome Hypermobility Type. Makayla’s passion is to raise awareness for the complex needs of those with rare diseases in addition to advocating for patient rights to privacy and support. She currently serves on the Board of Directors of Colorado Rare 501c(3), and is a member of the Family Advisory Council at Children’s Hospital Colorado. She enjoys spending time with her family, exploring Colorado’s beautiful sites, writing and creating art with her daughter Lily Kate. You can find their first book, BE KIND, Silly available on Amazon.
Shawnae Jebbia is the official spokesperson for Some 1 Like You L3C (S1LY,) ambassador for Colorado Rare, brand ambassador for Signia Hearing Instruments, and former Miss USA 1998. Over the past 10 years, Shawnae has been traveling the world as an advocate of early detection of hearing loss, and the rare disease that gave her the symptoms she is living with. She spoke to Congress on Rare Disease Day, participated in rare disease events at Children’s Hospital, and the Ryan Seacrest Foundation. She also enjoys traveling with S1LY and teaching youth advocacy for disclosure empowerment. Shawnae suffers from a rare form of Meniere’s Disease with degenerative hearing loss, tinnitus, vertigo, chronic fatigue, and water retention. Shawnae shares her story of living with an invisible disease and how that affects her life.
Based in Cheyenne, Wyoming, This is Me Podcast is hosted by Brandi Lea Nash and Amie Lou Siemens. Inspired by the thought that women can change their lives and change the lives of others by sharing their stories instead of hiding them is the foundation of their mission. They believe that you can turn your struggle into your story. Each episode is a fun and heart-warming combination of life in the Rocky Mountain Region and features a story by a phenomenal woman. The show is available on SoundCloud, iTunes, iHeart Radio Podcasts and Spotify.